You’ve got this.
We’ll make sure of it.
Starting a therapy like EXONDYS 51 can be a hopeful but complex time in your family’s life. We’re committed to ensuring that you know what to expect and have assistance at every step of the process. That’s why we developed SareptAssist, our comprehensive patient support program, designed to provide you with information to help you navigate starting and staying on EXONDYS 51.
Meet Ricky, age 19
Deletion of exons 45-50
Getting started with SareptAssist.
With your consent and signature, your doctor completes and sends in the SareptAssist START form. This form authorizes your Case Manager to start a benefits investigation on your current insurance coverage. Download the form to get the ball rolling.
SareptAssist is a resource available only to those who have been prescribed EXONDYS 51 (eteplirsen). SareptAssist is only available in the U.S.
Questions? Just give us a call at 1-888-SAREPTA (888-727-3782). Case Managers are available Monday – Friday 8:30am – 6:30pm ET.
Here's how SareptAssist can help:
One-on-one support from a dedicated Case Manager.
Once you enroll with SareptAssist, you’ll be connected to a dedicated Case Manager with experience in rare diseases, including knowledge of insurance plans and healthcare networks. While your doctor is your primary resource for discussing your medical needs, your Case Manager can be one of your key contacts for questions regarding insurance benefits, coordination of drug delivery, and access.
Assistance with treatment locations.
You may receive EXONDYS 51 infusions at your doctor’s office, an infusion center, or at home. Your Case Manager will help by providing information on locations; discuss these options with your doctor to decide what’s best for your family.
Assistance with treatment locations.
You may receive EXONDYS 51 infusions at your doctor’s office, an infusion center, or at home. Your Case Manager will help by providing information on locations; discuss these options with your doctor to decide what’s best for your family.
Coordinating delivery of EXONDYS 51.
Once your insurance benefits are confirmed, SareptAssist will work with the providing specialty or hospital pharmacy to coordinate treatment access and drug delivery to your treatment location.
Support for the long run.
You can count on SareptAssist support throughout your treatment journey. Whether you are changing insurance companies, appealing a denial of coverage, or planning a well-deserved vacation, we’ll work with you to ensure that your treatment continues uninterrupted.
Information on financial assistance programs.
Your SareptAssist Case Manager can also provide information on financial support options you may qualify for, including the Co-Pay Assistance Program, Patient Assistance Program, and other support programs designed to assist with access to treatment.
Meet Holly, Zyler, and Ashley.
Holly was devastated by her son Zyler's Duchenne diagnosis at age 3. Learn how Ashley, a SareptAssist Case Manager, provided the information Holly needed to get Zyler started on EXONDYS 51.
Questions about SareptAssist?
We are here to help.
Just give us a call at 1-888-SAREPTA (888-727-3782). Case Managers are available Monday – Friday 8:30am – 6:30pm ET.
Spanish-speaking Case Managers and interpreters for other languages are available. SareptAssist is a resource available only to those who have been prescribed EXONDYS 51. SareptAssist is only available in the U.S.
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from Sarepta.
“My Case Manager, Ashley, really went above and beyond when I didn’t know what to expect. She guided me through the steps, followed up on my questions about insurance reimbursement, and helped us through the process of getting Zyler started on therapy.”
–Holly, Zyler’s mom
Related FAQs
Several advocacy organizations offer Duchenne patients and families the opportunity to come together at events throughout the year. Find out more about Duchenne advocacy groups.
Once your child is prescribed EXONDYS 51, you may enroll in SareptAssist, our patient support program. Your Case Manager will start a benefits investigation on your current insurance plan and can help explain details about your coverage. How SareptAssist can help.